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Author Topic: hypochondrial primitive has daughter with George III's madness  (Read 532 times)

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Offline franksolich

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hypochondrial primitive has daughter with George III's madness
« on: June 22, 2013, 05:54:04 PM »
http://www.democraticunderground.com/11471418

Oh my.

In case one doesn't know, this is what drove George III nuts.

Quote
mopinko (39,773 posts)    Sun Jun 2, 2013, 09:43 PM

porphyria?

never heard of it till the other day when my baby- aged 20, was told that she might have it. the kid has been sick since she was 9, dx'd w/crohn's, and had the strangest collection of symptoms/problems/dx's that there ever was.

she was sent to an allergist because she was breaking out from the sun. after looking over her whole medical record, which is about 2 gig, and looking at her skin, etc, said she thought this might be it. after her looking into it, she also found several oddball things that finally made sense.

they are waiting for her to break out again, and they will biopsy the bumps. after that probably genetic testing.

her older sister and i are both almost as messed up as she is*, and we have figured for a long time it is genetic.
 
i have read the wiki, and know that sometimes it can kill you, and that is about it. and the only real treatment is a liver transplant.

*nope; mom's the most screwed up of the family.

Ugly butts in, but never mind.

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mopinko (39,773 posts)    Wed Jun 19, 2013, 09:17 AM

3. yeah the root word is purple.

pee turns purple or dark brown in the sun.

that "only when you are having an attack" part is what makes this so hard to find.
 
but kiddo had a lesion biopsied the other day, so hopefully we will know soon.

the bad part is they told her she would have to go to mayo clinic for treatment. that is not so terrible except that she was there last year, and we were not happy.* both of us thought that they treated her like it was "all in her head" once they saw she was on psych drugs, and been hospitalized.

i suspect that is pretty common for sufferers. if the disease doesn't get you, the docs will.

*of course; the hypochondrial primitive is never happy.
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Offline JohnnyReb

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Re: hypochondrial primitive has daughter with George III's madness
« Reply #1 on: June 22, 2013, 05:59:29 PM »
Need some unknown, incurable disease to collect the most gummint freebies, you know.
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Offline franksolich

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Re: hypochondrial primitive has daughter with George III's madness
« Reply #2 on: June 22, 2013, 06:14:16 PM »
Quote from: JohnnyReb on June 22, 2013, 05:59:29 PM
Need some unknown, incurable disease to collect the most gummint freebies, you know.

Yeah.

The hypochondrial primitive's had not only the West Nile virus, but the East Nile virus, the North Nile virus, the South Nile virus, and the Mississippi runs.  She's also had hemophia and prostrate problems.

But oddly, she's never had any fatal afflictions.

Damn.
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Offline I_B_Perky

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Re: hypochondrial primitive has daughter with George III's madness
« Reply #3 on: June 22, 2013, 08:52:30 PM »
Quote from: franksolich on June 22, 2013, 06:14:16 PM
Yeah.

The hypochondrial primitive's had not only the West Nile virus, but the East Nile virus, the North Nile virus, the South Nile virus, and the Mississippi runs.  She's also had hemophia and prostrate problems.

But oddly, she's never had any fatal afflictions.

Damn.

Too bad she hasn't gotten Ebola Zaire virus.
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Offline obumazombie

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Re: hypochondrial primitive has daughter with George III's madness
« Reply #4 on: June 22, 2013, 09:00:51 PM »
It seems the libs got a memo to get off the Epstein Barr virus bandwagon. I haven't heard anything from that Nobel prize winning discovered disease within a year of it being "discovered".
Not to go too far afield, but I haven't heard much from Legionnaire's disease either, even though it was a real valid disease.


edit sp
« Last Edit: June 23, 2013, 02:08:54 AM by obumazombie »
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Offline Bad Dog

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Re: hypochondrial primitive has daughter with George III's madness
« Reply #5 on: June 23, 2013, 01:30:00 AM »
Quote from: obumazombie on June 22, 2013, 09:00:51 PM
It seems the libs got a memo to get off the Epstein Barr virus bandwagon. I haven't heard anything from that Nobel prize winning discovered disease within a year of it being "discovered".
Not to go too far afield, but I haven't hear much from Legionnaire's disease either, even though it was a real valid disease.

Saw a news report that Legion membership is dropping off.  That's probably why.
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Offline BlueStateSaint

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Re: hypochondrial primitive has daughter with George III's madness
« Reply #6 on: June 23, 2013, 05:33:06 AM »
Quote from: I_B_Perky on June 22, 2013, 08:52:30 PM
Too bad she hasn't gotten Ebola Zaire virus.

Or, for that matter, Ebola Reston.
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Offline ExGeeEye

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Re: hypochondrial primitive has daughter with George III's madness
« Reply #7 on: June 23, 2013, 06:19:59 AM »
"Met any good trees lately?"
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Offline AprilRazz

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Re: hypochondrial primitive has daughter with George III's madness
« Reply #8 on: June 23, 2013, 09:17:55 AM »
Quote from: obumazombie on June 22, 2013, 09:00:51 PM
It seems the libs got a memo to get off the Epstein Barr virus bandwagon. I haven't heard anything from that Nobel prize winning discovered disease within a year of it being "discovered".
Not to go too far afield, but I haven't heard much from Legionnaire's disease either, even though it was a real valid disease.


edit sp
Pop had a bout with legionnaires two years ago. Spent a week on a respirator.
We still have no idea where he picked it up.
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Offline obumazombie

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Re: hypochondrial primitive has daughter with George III's madness
« Reply #9 on: June 23, 2013, 01:33:10 PM »
Quote from: AprilRazz on June 23, 2013, 09:17:55 AM
Pop had a bout with legionnaires two years ago. Spent a week on a respirator.
We still have no idea where he picked it up.
I hope he's fully recovered. Still no update on Epstein Barr. I'm not surprised.
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