Author Topic: maximally mad primitive gets new ears  (Read 795 times)

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Offline franksolich

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maximally mad primitive gets new ears
« on: March 05, 2009, 10:37:30 AM »
http://www.democraticunderground.com/discuss/duboard.php?az=view_all&address=381x374

Oh my.

Of course it's all good, for those who once had hearing, and then lost some or most of it; it's not so good (psychologically) for those who never had hearing.

This bonfire was lit this past June, but there's an update.

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madmax  (1000+ posts)      Wed Jun-25-08 01:30 PM
Original message
 
Cochlear Implants??? Anyone? Anyone?

I've had sensori-neural hearing loss since my mid-twenties and it's be a progressive journey. I also have Rheumatoid Arthritis for which my meds have seemed to stop working. My personal theory is that they are crap from China but, I digress.

My Primary Care Dr. referred me to Duke Univ. Med. Ctr. R/A clinic. During the time she was taking my history she inquired about my hearing loss since it was obvious I was struggling to hear her.

We danced around the same ol crap of aids which I'm sick and tired of explaining to people that they would help me as much as bi-focals will help Stevie Wonder. That usually works but, sometime not.

Anyway she made an appt. for me to have hearing tests and eval at Duke. Had the test yesterday.

Well knock me out!!! Now they tell me I'm a candidate for an implant!?! I'm at the end of my life journey so to speak and NOW... ok, yes better late than never. But, I'm apprehensive about this. I need to have a CT scan July 8th to the mastoid bone and cochlea are healthy.

I'm not asking for advice (mods  Just wondering if anyone here has contemplated an implant, do you know anyone who has had one? The Otolaryngologist told me I could even go to Med-El near Duke at Raleigh Triangle Park to the company office and speak with someone there about their implant. He also have me tons of literature to read from 2 companies that Duke uses for implants. Med-El and Harmony.

The cost is 100K but, he and the audiologist handle the insurance paper work. They said it's rare if ever that insurance companies deny implants.

I haven't used a telephone for over 10 years but, with the implant they said 85% of the patients use regular phones and cell phones. I'm tired of always needing to nag my husband about making calls for me!! And to understand speech, hear the ocean, birds chirp... but, it still scares me.

Any feed back will be appreciated.

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[FunkyLeprechaun (1000+ posts)      Fri Jul-11-08 02:32 PM
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1. I was born deaf 

And got a CI 11 years ago, I got another one 3 years ago for my right ear. Before my CI I never used the phone. Now I do, but only with people who I understand (female members of my family for example).

That's amazing for someone who was born deaf and never used a telephone other than the TTY.

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madmax  (1000+ posts)      Sat Aug-02-08 03:23 PM
Response to Reply #1
 
2. Hi!! 

I just check in to see if anyone posted and finally someone did  I had the operation on Thursday and was home Thursday night. Only had some pain for the first few hours after the operation.

Wow!! that is amazing! I'm so happy for you. IMHO, People have no empathy for hearing impaired or the deaf. And not that I think blind people have it made it's just that people don't make fun and pull practical jokes.

And the one thing that drove me DAMN NUTS was everyone telling me to get a hearing aid. As if I was so vain as to want to not hear as opposed to wearing an aid. I got tired of trying to explain that there are just some things that CAN'T be fixed! So I would say, right and if Stevie Wonder got bi-focals he could see. That usually got them to understand.

My Mom would send me the 'Miracle Ear' ad out of magazines and tell me to send for it.

Had the operation on Thursday and was home Thursday night. Only had some pain for the first few hours after the operation. My hearing loss began when in my 20's and has been progressive (I'm 59) The implant is in my right ear because I only had 12% hearing and I have about 40% in my right ear but, it sounds muffled. Like I'm underwater trying to understand the words.

The audiologist told me that the speech I hear with the implant would sound like a recording or mechanical. She said years ago people who had had hearing and went deaf described it as sounding like Daffy Duck. Well, I told her I don't know if I want Daffy living in my head. Just kidding - I want to hear speech so I don't care who it sounds like.

But, I think the best discription given to me was by my daughter in law. She said, it probably sounds emotionless. Without normal inflections that humans project when they talk. Sounds good to me!

How long did you have to wear that protection cap on the side of your head? I'm want to take this damn thing off. First time I saw the Dr. he said I'd wear it for about 3 days. When leaving the nurse said wear it for 5 days. I may take it off later.

If you have time can you tell me how long it takes after the processor is programmed for the brain to adjust and begin to learn... oy, well I think you know what I mean.

About how long does it take before one is 'hearing' words. They're making a big deal about support etc. My husband is very supportive. He's only person I know that has never gotten exasperated at having to repeat to me.

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sandnsea  (1000+ posts)      Fri Feb-27-09 11:31 PM
Response to Reply #2
 
3. I had ear repair surgery today

I have a big plastic cup on my ear, now I know a little how dogs feel when they have those cones on their heads.

They hopefully fixed a hole in my ear drum and removed most of the bone because I have cholosteotoma and didn't really understand what was happening. So they are talking about some kind of implant or bone hearing aid in 6 months. I hear fine out of the left ear so I'm not sure I would want distorted hearing, although there are times I can't hear and have to ask people to speak up.

Well, one sincerely hopes the newly-hearing primitives enjoy their experiences.

Because there won't be any such thing under 0bamacare.
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Offline USA4ME

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Re: maximally mad primitive gets new ears
« Reply #1 on: March 05, 2009, 12:35:19 PM »
Quote from:
madmax

I've had sensori-neural hearing loss since my mid-twenties and it's be a progressive journey. I also have Rheumatoid Arthritis for which my meds have seemed to stop working. My personal theory is that they are crap from China but, I digress.

So sensori-neural hearing and Rheumatoid Arthritis are from China.  Who knew?

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Offline Chris_

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Re: maximally mad primitive gets new ears
« Reply #2 on: March 05, 2009, 12:40:00 PM »
So sensori-neural hearing and Rheumatoid Arthritis are from China.  Who knew?

.

Yep. Available from Wal-Mart.  :-)
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Offline Karin

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Re: maximally mad primitive gets new ears
« Reply #3 on: March 05, 2009, 12:40:34 PM »
Franksolich, why do you say this?

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it's not so good (psychologically) for those who never had hearing.

Please, I'm not being snarky, I'm just curious.  You're right about the Obamacare.  Not a freakin chance in the world would they get these CI's at $100K a pop.  

Offline Rebel

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Re: maximally mad primitive gets new ears
« Reply #4 on: March 05, 2009, 12:51:49 PM »
Franksolich, why do you say this?

Please, I'm not being snarky, I'm just curious.  You're right about the Obamacare.  Not a freakin chance in the world would they get these CI's at $100K a pop.  

Someone asked about this a while back. His answer was something to the effect of if you've built your entire life around being deaf, built up your perceptions, your other senses, why would you want to alter it? Also, I think he said it would cause an awkwardness that he, and possibly many others, don't see as benefiting them.
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Offline franksolich

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Re: maximally mad primitive gets new ears
« Reply #5 on: March 05, 2009, 04:19:42 PM »
Someone asked about this a while back. His answer was something to the effect of if you've built your entire life around being deaf, built up your perceptions, your other senses, why would you want to alter it? Also, I think he said it would cause an awkwardness that he, and possibly many others, don't see as benefiting them.

Damn, Rebel, you're good, sir.

That's pretty much on the mark.

While I am whole-heartedly in favor of people who were born hearing, but developed deafness, having the condition corrected as much as possible, if one is naturally born that way, it's best to leave it alone.

Our instincts, our defenses, our survival skills, develop and evolve in the womb, long before we're even born.  This is one of the wonders of nature, creating beings with their individual ability to adapt and use certain mechanisms to survive.

It's not only scientific, but Biblical too.

An infant developing without ears, or without hearing, is "evolving" certain instinctive skills and talents to best suit him in the world of which he is about to become a part.

Those skills and talents are not the same skills and talents developing in an infant growing with ears, or with hearing.

A deaf child coming into the world with the peculiar instincts and talents of the deaf, if suddenly able to hear, finds his natural instincts and talents worthless, and has not the means to develop ones more comparable to those with hearing.

There still haven't been enough cochlear implants done yet to provide more than a blurry picture, but as the picture sharpens, this seems to be coming into focus: (a) people who were born hearing who have the procedure done, do well, very well; and (b) people who were born deaf who have the procedure done, have an abysmally high rate of suicide.....even if the procedure was done on them as tiny infants.

There's two different worlds here; for those born deaf, even our perceptions of time, space, color, and light vary considerably from those born hearing.

For example, for me, if not busy, time flies.  For hearing people, if not busy, time drags.

That sort of thing.

It's just a very different sort of world.

I get into arguments with the militant deaf about this all the time; I'm considered an Uncle Tom or Oreo cookie, among those who actually believe the "culture" of the deaf is superior to the common culture.....and into arguments with the hearing world, who seem to believe that the common culture is better than the deaf "culture."

I'm always been a rock and a hard place.

a fronte praecipitum, a tergo lupus

One time, I had a landlady curious about hearing, and I took her to an audiologist.

The audiologist put her into a dark room, made her "deaf," and for half an hour or so demonstrated to her what, and how, I "hear."  She came out of there considerably shaken, and shook at random short times for months thereafter; she had no idea, and it was so different from what she imagined it to be, that she was terrified.

The same would happen to me, if I suddenly heard; I have no doubt I would be joining the subway cat in that big building with small rooms with soft walls.
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Offline The Village Idiot

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Re: maximally mad primitive gets new ears
« Reply #6 on: March 05, 2009, 11:43:53 PM »
mods  Just wondering if anyone here has contemplated an implant, do you know anyone who has had one?

yes. Rush Limbaugh.

Offline Chris

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Re: maximally mad primitive gets new ears
« Reply #7 on: March 05, 2009, 11:49:51 PM »
yes. Rush Limbaugh.

Yeah, they would know that if they bothered to listen to his show.
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